Adding to the Pile of Good Things: Electric Heater

“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who In the last couple of weeks the weather’s done that thing … Continue reading Adding to the Pile of Good Things: Electric Heater

Chronic Illness vs the Environment

Content warning: Ableism This post is proving surprisingly painful to write. I’ve cared a lot about the environment and made a lot of progress in doing things in a more environmentally friendly way in the past. It’s been very hard to reconcile that with my drastically altered needs as a chronically ill person, and the … Continue reading Chronic Illness vs the Environment

Aboard the Ship Self-Help 2: But won’t being vulnerable make me really vulnerable…?

I’ve just finished reading the introductions and first chapter of Rising Strong, and listening to the corresponding episode of the podcast Big Strong Yes. It’s really an introduction to the whole concept of what Brené Brown calls ‘rising strong’. What she’s talking about is how you get up again after a fall. Even a really … Continue reading Aboard the Ship Self-Help 2: But won’t being vulnerable make me really vulnerable…?

Welcome to my Voyage on the Good Ship Self-Help

Greetings, dear reader. Why yes, now that you mention it I am feeling rather chipper and I’m making the most of it. I’ve just finished listening to an excessively hilarious podcast, I’m about to start listening to the commentary on the Doctor Who story Enemy of the World (ermagaahhhd so good), and I’ve been chatting … Continue reading Welcome to my Voyage on the Good Ship Self-Help

I Hate Having Carers: A Rant

It’s been a bad week. On Tuesday I had to bring up issues with two of my carers, something which inevitably produces fun anxiety symptoms like tummy problems, pins and needles in my hands, constant rocking in an attempt to self-soothe, and an inability to rest. It’s so frustrating. These are not big issues, yet … Continue reading I Hate Having Carers: A Rant

Why Can’t I Just Ask For Stuff?

It should be easy but it's not. I’ve got other things to write about but this has been bugging me. Why can’t I just ask for stuff? On the face of it it’s simple, but really it isn’t. It’s so complicated that often it just becomes impossible. It’s been a problem with me for, like, … Continue reading Why Can’t I Just Ask For Stuff?

My Stairlift: Delight and Disappointment

In which I get a stairlift and while it’s better than having no stairlift it isn’t ideal and is a good reminder of how disabled people are so often forced to accept second best. This stairlift has turned into rather a saga. First the delivery lorry broke down and the provider decided it was reasonable … Continue reading My Stairlift: Delight and Disappointment

Living With ME: a video

In which I make a video for the first time and talk a little bit about how it feels, with really bad visual and audio (sorry). Also sorry about the lack of subtitles, it seemed really complicated to add them and I'm so tired. There is a transcript below though.   https://youtu.be/Z2aoW6NV2tg   Transcript 00:00 … Continue reading Living With ME: a video

Five Times Telling Stories Saved My Life

…and how reading them saves my life every single day. If this sounds like hyperbole, it’s not, or only slightly. At the moment I pretty much live on the Coping Precipice and story is one of the things that stops me from tumbling right over. I want to take a moment to define what I … Continue reading Five Times Telling Stories Saved My Life

Trying To Get Off The Optimism Train

In which optimism turns out to be really hard work but doesn’t have an off switch. I think that like many things from gender to the bitterness of chocolate, optimism and pessimism are places on a scale. If there were a Kinsey scale for optimism/pessimism I would be at the TOTALLY GAY end of it. … Continue reading Trying To Get Off The Optimism Train