Adding to the Pile of Good Things: the Brain Frog

“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who Well, it’s been rather over a week since I wrote about … Continue reading Adding to the Pile of Good Things: the Brain Frog

My Stairlift: Delight and Disappointment

In which I get a stairlift and while it’s better than having no stairlift it isn’t ideal and is a good reminder of how disabled people are so often forced to accept second best. This stairlift has turned into rather a saga. First the delivery lorry broke down and the provider decided it was reasonable … Continue reading My Stairlift: Delight and Disappointment

Living With ME: a video

In which I make a video for the first time and talk a little bit about how it feels, with really bad visual and audio (sorry). Also sorry about the lack of subtitles, it seemed really complicated to add them and I'm so tired. There is a transcript below though.   https://youtu.be/Z2aoW6NV2tg   Transcript 00:00 … Continue reading Living With ME: a video

The Frightening Decline

It’s not typical for someone to keep getting worse when they have reduced their activity as much as you have. This was the news the OT from the fatigue clinic gave me when I saw him seven weeks ago. It threw me into a spiral of fear and depression which I have yet to emerge … Continue reading The Frightening Decline