“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who In the last couple of weeks the weather’s done that thing … Continue reading Adding to the Pile of Good Things: Electric Heater
Tag: Chronic Fatigue Syndrome
Adding to the Pile of Good Things: the Brain Frog
“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who Well, it’s been rather over a week since I wrote about … Continue reading Adding to the Pile of Good Things: the Brain Frog
Chronic Illness vs the Environment
Content warning: Ableism This post is proving surprisingly painful to write. I’ve cared a lot about the environment and made a lot of progress in doing things in a more environmentally friendly way in the past. It’s been very hard to reconcile that with my drastically altered needs as a chronically ill person, and the … Continue reading Chronic Illness vs the Environment
I Hate Having Carers: A Rant
It’s been a bad week. On Tuesday I had to bring up issues with two of my carers, something which inevitably produces fun anxiety symptoms like tummy problems, pins and needles in my hands, constant rocking in an attempt to self-soothe, and an inability to rest. It’s so frustrating. These are not big issues, yet … Continue reading I Hate Having Carers: A Rant
Why Can’t I Just Ask For Stuff?
It should be easy but it's not. I’ve got other things to write about but this has been bugging me. Why can’t I just ask for stuff? On the face of it it’s simple, but really it isn’t. It’s so complicated that often it just becomes impossible. It’s been a problem with me for, like, … Continue reading Why Can’t I Just Ask For Stuff?
My Stairlift: Delight and Disappointment
In which I get a stairlift and while it’s better than having no stairlift it isn’t ideal and is a good reminder of how disabled people are so often forced to accept second best. This stairlift has turned into rather a saga. First the delivery lorry broke down and the provider decided it was reasonable … Continue reading My Stairlift: Delight and Disappointment
Living With ME: a video
In which I make a video for the first time and talk a little bit about how it feels, with really bad visual and audio (sorry). Also sorry about the lack of subtitles, it seemed really complicated to add them and I'm so tired. There is a transcript below though. https://youtu.be/Z2aoW6NV2tg Transcript 00:00 … Continue reading Living With ME: a video
Five Times Telling Stories Saved My Life
…and how reading them saves my life every single day. If this sounds like hyperbole, it’s not, or only slightly. At the moment I pretty much live on the Coping Precipice and story is one of the things that stops me from tumbling right over. I want to take a moment to define what I … Continue reading Five Times Telling Stories Saved My Life
Trying To Get Off The Optimism Train
In which optimism turns out to be really hard work but doesn’t have an off switch. I think that like many things from gender to the bitterness of chocolate, optimism and pessimism are places on a scale. If there were a Kinsey scale for optimism/pessimism I would be at the TOTALLY GAY end of it. … Continue reading Trying To Get Off The Optimism Train
Speaking of Spoons
In which I talk of many things, of shoes and ships and sealing wax and cabbages and kings. No, wait, spoons. Just spoons. A spoon is a simple thing: a small bowl on the end of a handle. But in the last few years the word has come to mean much more than that. It … Continue reading Speaking of Spoons
