It should be easy but it's not. I’ve got other things to write about but this has been bugging me. Why can’t I just ask for stuff? On the face of it it’s simple, but really it isn’t. It’s so complicated that often it just becomes impossible. It’s been a problem with me for, like, … Continue reading Why Can’t I Just Ask For Stuff?
In which I make a video for the first time and talk a little bit about how it feels, with really bad visual and audio (sorry). Also sorry about the lack of subtitles, it seemed really complicated to add them and I'm so tired. There is a transcript below though. https://youtu.be/Z2aoW6NV2tg Transcript 00:00 … Continue reading Living With ME: a video
…and how reading them saves my life every single day. If this sounds like hyperbole, it’s not, or only slightly. At the moment I pretty much live on the Coping Precipice and story is one of the things that stops me from tumbling right over. I want to take a moment to define what I … Continue reading Five Times Telling Stories Saved My Life
In which I talk of many things, of shoes and ships and sealing wax and cabbages and kings. No, wait, spoons. Just spoons. A spoon is a simple thing: a small bowl on the end of a handle. But in the last few years the word has come to mean much more than that. It … Continue reading Speaking of Spoons
In which I am so bored I want to scream and break things. Content warning for suicidal thoughts. It was a bad morning anyway because I’d had my hair cut the day before, which involves energy draining activities such as going downstairs (and, worse, coming back up them again!) and talking to people (it’s tiring … Continue reading Living with ME: Boredom
People tell me I’m strong all the time and it always bothered me in that small squirmy way where you aren't quite sure why you dislike the thing, just that you do. Here, I’ve finally thought my way through the problem and discovered that there are a few reasons I am uncomfortable with being called … Continue reading When You Call Me Strong, Who Do You Think Is Weak?
Trigger warning: Self-harm I regard them with fear and loathing, and I avoid them whenever possible. It’s their own fault. If only they’d be nicer to me, I’d be nicer to them, but instead they keep intruding when they’re not wanted and are a constant, grating, irritant. I have a really bad relationship with my … Continue reading On The Nurturing Of My Senses
Loneliness affects many people: people with chronic illnesses, disabled people, old people, poor people. People with ME/CFS, of course, can fit into any and all of these categories, and it’s a huge problem. The Millions Missing campaign highlights it from the other side by campaigning for more funding for the millions of people who are … Continue reading Living With ME: Loneliness
ME/CFS can’t be prevented, we all know that. But do we? Certainly it isn’t something that medical professionals talk about, or ME/CFS advocacy and patient support groups, and equally certainly there is no proven method of prevention. I, personally, don’t believe that that means it isn’t possible. I think that we can protect ourselves, at … Continue reading The Prevention of ME/CFS?