Adding to the Pile of Good Things: Electric Heater

“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who In the last couple of weeks the weather’s done that thing … Continue reading Adding to the Pile of Good Things: Electric Heater

Adding to the Pile of Good Things: the Brain Frog

“The way I see it, every life is a pile of good things and bad things. The good things don’t always soften the bad things, but vice versa, the bad things don’t always spoil the good things and make them unimportant.” – Doctor Who Well, it’s been rather over a week since I wrote about … Continue reading Adding to the Pile of Good Things: the Brain Frog

Chronic Illness vs the Environment

Content warning: Ableism This post is proving surprisingly painful to write. I’ve cared a lot about the environment and made a lot of progress in doing things in a more environmentally friendly way in the past. It’s been very hard to reconcile that with my drastically altered needs as a chronically ill person, and the … Continue reading Chronic Illness vs the Environment

I Hate Having Carers: A Rant

It’s been a bad week. On Tuesday I had to bring up issues with two of my carers, something which inevitably produces fun anxiety symptoms like tummy problems, pins and needles in my hands, constant rocking in an attempt to self-soothe, and an inability to rest. It’s so frustrating. These are not big issues, yet … Continue reading I Hate Having Carers: A Rant

Why Can’t I Just Ask For Stuff?

It should be easy but it's not. I’ve got other things to write about but this has been bugging me. Why can’t I just ask for stuff? On the face of it it’s simple, but really it isn’t. It’s so complicated that often it just becomes impossible. It’s been a problem with me for, like, … Continue reading Why Can’t I Just Ask For Stuff?

Living With ME: a video

In which I make a video for the first time and talk a little bit about how it feels, with really bad visual and audio (sorry). Also sorry about the lack of subtitles, it seemed really complicated to add them and I'm so tired. There is a transcript below though.   https://youtu.be/Z2aoW6NV2tg   Transcript 00:00 … Continue reading Living With ME: a video

Five Times Telling Stories Saved My Life

…and how reading them saves my life every single day. If this sounds like hyperbole, it’s not, or only slightly. At the moment I pretty much live on the Coping Precipice and story is one of the things that stops me from tumbling right over. I want to take a moment to define what I … Continue reading Five Times Telling Stories Saved My Life

Speaking of Spoons

In which I talk of many things, of shoes and ships and sealing wax and cabbages and kings. No, wait, spoons. Just spoons. A spoon is a simple thing: a small bowl on the end of a handle. But in the last few years the word has come to mean much more than that. It … Continue reading Speaking of Spoons

Living with ME: Boredom

In which I am so bored I want to scream and break things. Content warning for suicidal thoughts. It was a bad morning anyway because I’d had my hair cut the day before, which involves energy draining activities such as going downstairs (and, worse, coming back up them again!) and talking to people (it’s tiring … Continue reading Living with ME: Boredom

When You Call Me Strong, Who Do You Think Is Weak?

People tell me I’m strong all the time and it always bothered me in that small squirmy way where you aren't quite sure why you dislike the thing, just that you do. Here, I’ve finally thought my way through the problem and discovered that there are a few reasons I am uncomfortable with being called … Continue reading When You Call Me Strong, Who Do You Think Is Weak?