In which I ramble about the last three months (nearly). It doesn’t seem like such a long time not to be posting, but it’s been strangely hard to get back into writing here. So in this post I’m not talking about any topic in particular, but just making a summary of what’s been going on … Continue reading I’m Back – And I’m Tired!
Severe ME Day was begun as a way and a time to remember those who have died from ME/CFS. It is held on the 8th of August because that was Sophia Mirza’s birthday: she was one of the first people in the world to have Chronic Fatigue Syndrome listed as the cause of death on … Continue reading Severe ME Day 2018
I wish I hadn’t been raised as a christian. You can always decide to be one later in life if you want to, but you can’t take away being raised to think that gay people are evil and that hell is real and imminent the moment you put a toe out of line. This, of … Continue reading Queer Christianity and Me
Before I get to the meat of this, let me celebrate this historic day by saying CONGRATULATIONS IRELAND! You beautiful, wonderful, brilliant people. Thank you for voting to allow women and other pregnant people to make their own choices about their own bodies. Thank you for voting for people not to be forced to travel … Continue reading Walking Away From My Wellness
Reading this back, I see that I mentioned going to the toilet a lot. The reason for this is that it was most of the activity I did on this day! Plus, one of my ME/CFS symptoms is a constant slightly-rough throat, which means I tend to drink a lot. 10.15 I wake up. It … Continue reading Living With ME: A Bad Day
A few years ago I met a young woman. She seemed very amiable and we met up a few times after I’d moved to a more northern city. I realised that she was in fact a prat when she made this remark about a person with ME/CFS: “She annoys me because she only makes the … Continue reading Living With ME: Priorities
Loneliness affects many people: people with chronic illnesses, disabled people, old people, poor people. People with ME/CFS, of course, can fit into any and all of these categories, and it’s a huge problem. The Millions Missing campaign highlights it from the other side by campaigning for more funding for the millions of people who are … Continue reading Living With ME: Loneliness