The Frightening Decline

It’s not typical for someone to keep getting worse when they have reduced their activity as much as you have. This was the news the OT from the fatigue clinic gave me when I saw him seven weeks ago. It threw me into a spiral of fear and depression which I have yet to emerge … Continue reading The Frightening Decline

Severe ME Day 2018

Severe ME Day was begun as a way and a time to remember those who have died from ME/CFS. It is held on the 8th of August because that was Sophia Mirza’s birthday: she was one of the first people in the world to have Chronic Fatigue Syndrome listed as the cause of death on … Continue reading Severe ME Day 2018

On The Nurturing Of My Senses

Trigger warning: Self-harm I regard them with fear and loathing, and I avoid them whenever possible. It’s their own fault. If only they’d be nicer to me, I’d be nicer to them, but instead they keep intruding when they’re not wanted and are a constant, grating, irritant. I have a really bad relationship with my … Continue reading On The Nurturing Of My Senses

12 Things Chronic Fatigue Syndrome Has Done To Me

One day perhaps I’ll be all mature and balanced, and write a post called “12 Things Chronic Fatigue Syndrome Has Done For Me”. Today, however, I’m writing about what the experience of ME/CFS is like for me and the changes it has made in my life. 1  General fatigue  Then: I would walk three miles … Continue reading 12 Things Chronic Fatigue Syndrome Has Done To Me